A fact I think tends to be frequently overlooked or glossed over is that fibromyalgia (FMS) can be either primary, meaning without a known trigger, or secondary, which means we know (or at least have a pretty good idea) why it developed.
While we still don't know exactly what's going on in the body that leads to fibromyalgia, we do know that chronic pain can cause changes in the brain and central nervous system that lead to central sensitization - essentially making the body overreact to pain and other stimuli (noise, smell, bright lights, etc.). That's why it's believed people with rheumatoid arthritis (RA), lupus, multiple sclerosis (MS) and other chronic pain conditions frequently develop FMS.
Why do I bring this up? Because I think it's important to make the distinction when we talk about treatments. For example, I've written here about my success with acupuncture. It could be that I've had amazing success because acupuncture is one of the best treatments for my original condition, which is myofascial pain syndrome (MPS, or CMP for chronic myofascial pain). In fact, that's why I started the treatments. I can't say for sure whether acupuncture relieved my fibromyalgia symptoms directly (some studies show it can), or whether relieving the MPS symptoms had a secondary effect of calming my fibro symptoms.
I probably wouldn't qualify for fibromyalgia drug trials because I have another pain condition that makes it hard to gauge what effect a fibromyalgia treatment is having. The same goes for someone with RA, MS, etc. It makes me wonder if that's part of why medications effect different people so differently. Maybe MPS-related FMS responds differently than primary FMS or RA-related FMS. (Maybe not, but wouldn't it be interesting to know for sure?)
Another reason I think the distinction is important is that some conditions that can lead to fibromyalgia may go undiagnosed, their symptoms lumped blindly in with FMS. My rheumatologist realized I had MPS well after diagnosing my FMS. I've had mild-to-moderate chronic pain, with bouts of severe pain, since I was 10 years old, but no one had ever figured out why. If she'd missed the MPS (like everyone else had), I'd probably be far less functional today.
Do you know if your FMS is primary or secondary? Has treating your other condition helped your FMS? Share your stories here or in About.com's Fibromyalgia & Chronic Fatigue Syndrome forum.




